March Webinar Series from the National Task Group on Dementia and IDD

posted Jan 22, 2013, 11:52 AM by Dicia Kemp

Sponsored by the American Academy of Developmental Medicine and Dentistry
Kathleen M. Bishop, Ph.D., Webinar Coordinator
For information:

The NTG has organized a special Webinar series within the general topical area of intellectual and developmental disabilities and dementia. Below is the schedule for the first phase, scheduled for March 2013. Other Webinars are in development for May and that schedule will be posted shortly.

The cost is $30 to attend all four live webinars. Webinars will be archived for those unable to view them live or for those joining mid series.

March Series Part 1: Dementia and Intellectual/ Developmental Disabilities

March 5, 2013, 1:00PM to 2:30PM EST
Introduction of Intellectual/Developmental Disabilities (IDD) and Dementia
Presenters: Matthew Janicki, Ph.D., University of Illinois at Chicago and Mary Hogan, MS, Family Advocate

This Webinar will include will include an overview of the demographic basis for the growth in the numbers of people affected by dementia, some diagnostic challenges that are specific to adults with I/DD, as well as some emerging community program options. The Webinar will also present personal stories from the perspective of family and staff caregivers and some of the challenges they face inproviding long-term supports and care for adults with I/DD affected by dementia.


  1. Participants will gain an understanding of the nature of dementia and how it affects people with I/DD.
  2. Participants will be able to describe means of assessing people affected by dementia and some of the community program options useful for agencies and families when providing long term care.
  3. Participants will be able to describe some of the specific challenges faced by family caregivers when confronted with signs of and then progression of dementia in someone for whom they care.

Register Now for the March series:

March 12, 2013, 1:00PM to 2:30PM EST:
The Importance of Early Detection and Diagnosis of Dementia for Adults with IDD
Presenter: Lucille Esralew, Ph.D., Trinitas Regional Medical Center

This session will focus on the importance of early detection and intervention, especially for adults with IDD as diagnostic overshadowing and lack of understanding of the symptoms for dementia in adults with pre-existing cognitive impairments are challenges in caregiving. That NTG on Dementia and IDD sub-committee on screening, chaired by Dr. Esralew, has developed a tool for early detection. This tool will be presented along with the findings from the first pilot of this tool.


  1. Participants will be able to list at least three reasons that early detection of cognitive and functioning decline due to dementia is essential for adults with IDD.
  2. Participants will be able to briefly discuss at least three of the diagnostic challenges in detecting dementia in adults with IDD.
  3. Participants will be able to briefly discuss the screening tool developed by the NTG Sub-committee and some of the findings in using the tool during the pilot implementation.

Register Now for the March series:

March 19, 2013, 1:00PM to 2:30PM EST:
Systems Issues for Adults with IDD and Dementia
Presenters: Kathy Service, RN, Ph.D., Massachusetts Department of I/DD and Mary Beth Schneider, NYSARC, Albany, New York

The Developmental Disabilities System has traditionally focused on children and young adults. Research and program adaptations for older adults has lagged behind the increasing numbers of older adults requiring services to meet changing needs, including the onset of loss due to dementia. Family, staff, and community health care providers have not traditionally been trained in this area so few resources exist to meet these new challenges. Additionally, it is essential that a person centered approach be used to make sure that a quality of life and care continues to be available for each individual adult with IDD and dementia. These issues will be discussed in this session.


  1. Participants will be able to list at least three systems issues that can potentially interfere with the quality of life of older adults with IDD and dementia.
  2. Participants will be able to define Person Centered Approach and the application for older adults with IDD.
  3. Participants will be able to list at least three system changes that can help maintain the quality of life for older adults with IDD.

Register Now for the March series:

March 26, 2013, 1:00PM to 2:30PM EST
Collaboration across the Networks for Adults with I/DD, Dementia, and Their Caregivers
Presenters: Larry Force, Ph.D., St. Mary’s College and TBA - NTG Member Advocate

Often the intersection of the aging networks with the IDD service network is through the caregivers who provide about 85% of the care for adults with IDD. However, older caregivers are experiencing the same rate of loss due to dementia as in the general older population. It is essential that the networks of resources and research are working together to solve this growing incidence of dementia in caregivers and adults with IDD. The existing gaps in services as well as possible points of duplication will be discussed as well as recommendations provided past on past experiences of networking and collaboration by the presenters.


  1. Participants will be able to discuss at least three reasons why the aging network and IDD network must work together to make a difference for all involved.
  2. Participants will be able to discuss at least one example of successful collaboration across the networks.
  3. Participants will be able to discuss the potential impact of the loss of the caregivers due to decline and frailty to both the aging and IDD networks.

Register Now for the March series: